Facial Neuralgia Resources - Together we can make a difference

TABLE OF CONTENTS
Last Updated 01/31/07

     DISCLAIMER
CONDITIONS
   FACIAL NEURALGIAS
OTHER CRANIAL NEURALGIAS
DENTAL CONDITIONS
NEURALGIA-LIKE DISORDERS
 
TREATMENTS
DRUGS
SURGERY
ALTERNATIVE
 
SUPPORT
ORGANIZATIONS
SUPPORT GROUPS
NEWSLETTER
TN-L MAILING LIST
TN-L ARCHIVES
WEB FORUM
CHAT ROOMS 
INTERNATIONAL SUPPORT
TRUE  STORIES
SHARE YOUR STORY
FAMILY & FRIENDS
CLINICS
SPECIALISTS
 
COPING SKILLS
PAIN MANAGEMENT
READER TIPS
NUTRITION
STRESS MANAGEMENT
HUMOR
EXPRESS YOURSELF
 
RESEARCH
BIBLIOGRAPHY
RESEARCH TOOLKIT
CLINICAL TRIALS
FACE PAIN SURVEY
BOOKSTORE
MEDICAL RESOURCES
 
NEWS / ANNOUNCEMENTS
ABOUT THIS WEBSITE
WHAT'S NEW
WHO WE ARE
OUR LOGO / THEME MUSIC
ACKNOWLEDGMENTS
OUR GOALS & GUIDELINES
G.U.E.S.T.B.O.O.K
JOIN US

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Search for books on Facial Neuralgias

 
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STRIKING BACK!

THE TRIGEMINAL NEURALGIA AND FACE PAIN HANDBOOK by 
George Weigel & 
Kenneth F. Casey, M.D,

The 2004 revision of this important book, published by the Trigeminal Neuralgia Association is available with updated information on face pain. With chapters on causes, diagnosis, latest  treatment options along with comparative  statistics on outcomes and  complications of  surgical procedures, recommendations on helping your doctor help you, this is a must read book for anyone with face pain.  There is much new information that makes it worthwhile to get the new edition of this book even if you own the first edition.  Read more about it  or Order your copy from the Trigeminal Neuralgia Association for $24.95. 

Facial Neuralgia Resources is a patient-to-patient resource for victims of face pain caused by disorders of the  cranial nerves.  These disorders include:

  • Trigeminal Neuralgia
  • Atypical Trigeminal Neuralgia 
  • Atypical Facial Pain
  • Anesthesia Dolorosa

Facial Neuralgia Resources is a direct offshoot of Trigeminal Neuralgia Resources established in 1995 by a group of TN patients.  We have expanded our focus to encompass all facial neuralgias as we feel strongly we will find strength in unity.  We believe our many common issues will lead to finding improved care for people with these terrible conditions.


Who We Are
Special Note: This site is administered by a group of facial neuralgia victims working on a volunteer basis. None of us is a medical professional and therefore we cannot always guarantee the quality of the medical information in these pages. We WILL NOT GIVE specific medical advice to anyone. These pages are simply here for you to browse and see what others have done or suggested. Before using or even considering any treatment listed here, we strongly urge you to talk with a qualified medical expert.


TOGETHER, WE CAN MAKE A DIFFERENCE

A great many other people have helped us in various ways. They are listed in the  Acknowledgements.
  

If you have something to contribute, be it a personal story or research  write to us.
 


TAKE A CLOSER LOOK

          True Stories
“I had worked too hard, had done too well, and wanted to do more in my life than just sit … a blob of pain quivering in its misery, hidden and alone.”   Read Paul’s Story about how recovery as a human being, as a functioning person, as a family member and as a professional is still possible despite unbearable, constant pain.

The 5th National  Trigeminal Neuralgia Association 2004
Conference Report and
Videos/DVD's are available for purchase

NEUROSTIMULATION
Another treatment
option to consider

MOTOR CORTEX STIMULATION
Read about one woman's experience with Motor Cortex Stimulation to relieve her facial pain.

            FACIAL PAIN
See this comprehensive Facial Pain resource with Dr. Kim Burchiel's new Face Pain classification,  along with an interactive Facial Pain Diagnosis tool.

DRUG RECALL
75 mcg/hr Duragesic Patch

TNA-UK
Take a look at the TNA-UK Website with forums, a chatroom and more.

Center for 
Cranial Nerve Disorders
.
Don't miss the  animated Trigeminal Neuralgia Tutorial (Highly recommended)  and an excellent Trigeminal Neuralgia Guide

MVD Video

View an online video of Microvascular decompression surgery (MVD) from the Skull Base Institute in Los Angeles, CA.

  DRUG ASSISTANCE PROGRAM 

Pharmaceutical companies sometimes provide prescription drugs free of charge to physicians whose patients cannot afford to buy necessary medications.  The  Directory of Prescription Drug Patient Assistance Programs  lists these drug companies, the medicines covered and eligibility criteria.

Trigeminal Neuralgia Association Conferences

TNA Conference 2000
  TNA  Summary
  TNA UK Summeray
  Debby Robarge's Notes
  Sher A. Cuzzivoglio's Notes
TNA Conference 1998
 
TNA Summary
  

CLINICAL TRIALS FOR FACIAL NEURALGIAS

RESEARCH TOOLKIT
Tools to help you do  your own research


 

BE PART OF THE SOLUTION...

If you or someone you know has been diagnosed with a facial neuralgia disorder, please consider participating in the Trigeminal Neuralgia Association's International Registry for patients with facial neuralgia disorders.   This survey will  gather  statistical information about facial neuralgia syndromes, treatment outcomes and side-effects.  All information you send will be kept completely confidential.  

Fill in  the TNA survey online or  phone, write or send email to the Trigeminal Neuralgia Association, requesting a survey be sent to you.  Be sure to include your mailing address and phone number.  Knowledge is power.  By joining together, we can lend our support in finding answers to these terrible disorders.

Please e-mail comments / suggestions to editors@facial-neuralgia.org 

© Copyright 1995-2007 Trigeminal Neuralgia Resources / Facial Neuralgia Resources   
Permission is granted for non-commercial replication of excerpts from this material, provided that appropriate notice is included of both its authorship and its copyright status. Permission for commercial replication must be obtained from the authors.
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